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Duchenne Muscular Dystrophy Part 3: Community & Home Environments

presented by Claudia Senesac

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Duchenne Muscular Dystrophy (DMD) is the most common childhood muscular dystrophy. Much of what we have known about this disease has been based on years of clinical observation, muscle biopsy, and other limited testing. Longitudinal studies and clinical trials are shaping our “new understanding” of this disease. The courses related to DMD will span pathophysiology, research, the development of therapy recommendations, and quality of life issues. Therapy recommendations are based on predictive models of biomarkers and function helping therapists and families plan for the future. Therapists play a critical role in caring for boys and young men with this disease.

Meet Your Instructor

  • Claudia Senesac, PT, PhD, PCS

    Claudia Senesac is a Clinical Associate professor at University of Florida in the Doctor of Physical Therapy department. Her teaching responsibilities include Functional Anatomy dissection and Pediatrics in Physical Therapy. She has over 37 years of pediatric clinical experience. She has been the owner and administrator of a pediatric physical therapy private practice since 1984 and is a board certified clinical specialist in Pediatrics. Claudia is still providing therapy to children with a variety of conditions. Her research focus has been in Duchenne Muscular Dystrophy (DMD). She is a sub-investigator for a multi-center NIH funded grant investigating Magnetic Resonance Imaging and Biomarkers in boys with Duchenne Muscular Dystrophy. In addition, she has spearheaded investigating the reliability and common errors seen in outcome measures in DMD across research and clinic sites. She is a national educator for Parent Project Muscular Dystrophy translating research to clinical practice. She has several publications in peer reviewed journals related to Duchenne Muscular Dystrophy as author and co-author. Most recently she was the recipient of the International Educator of the Year award for the College of Public Health and Health Professions at UF, 2016, and in 2014 Outstanding Pediatric Clinician Award from the Pediatric Section of the APTA.

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Chapters & Learning Objectives

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  1. Keeping Your Patient Mobile and Active

    1. Keeping Your Patient Mobile and Active

    Chapter one will identify and justify the benefits of stretching in this population. We will also discuss precautions of particular techniques of stretching that are considered contraindicated at this time in this population

  2. Exercise Guidelines

    2. Exercise Guidelines

    Chapter two will discuss exercise, the advantages, and contradictions. Learners will be able to discuss and describe the current recommendations for exercise in this population.

  3. Equipment Changes and Challenges Across the Stages of DMD

    3. Equipment Changes and Challenges Across the Stages of DMD

    Chapter three will discuss the important points to consider in selection of equipment for use at home and in the community and correlate the transitional stages of DMD with the need for particular pieces of durable medical equipment. Additionally, participants will be able to discuss and recommend equipment for safe transfers.

  4. Case Examples

    4. Case Examples

    Presentation of a case examples highlighting differences in gait and functional skills. Demonstration of passive and active stretching and bracing to preserve ROM.

  5. Participation and Quality of Life (QOL)

    5. Participation and Quality of Life (QOL)

    This chapter will explore aspects that are critical to consider in your overall plan of care. The inclusion of participation in community to enhance a young persons’ quality of life will be highlighted. Warning signs of depression for patient and caregiver will be explored and the role of the physical therapist when providing care to a patient with DMD and their family. Resources will be surveyed.

  6. Panel Discussion

    6. Panel Discussion

    In this chapter we will interview the mother of a young boy with DMD and pediatric physical therapist. Questions will explore the challenges and difficulties surrounding the daily routine of having a child with DMD. The therapist will describe the role they play in the care of a child with DMD. Each participant will highlight pearls of wisdom for therapists treating the patient with DMD and their families.